Sustainable data regulation for the Berlin health sector: background and policy recommendations

Digitization has great socio-ecological potential in the healthcare sector. The processing of health data can lead to an improved information and decision-making basis and thus promote public health. Furthermore, citizens can be empowered to manage their own health data in a data-sovereign manner and to make it available for the common good by "donating" data. However, there are risks to be considered. For example, data-sovereign decisions must made be possible in actuality and for everyone, and personality-related risks are particularly relevant in the area of sensitive health data.

This background paper examines and evaluates different approaches to data regulation in the Berlin health sector from a socio-ecological perspective and formulates policy recommendations for decision-makers in Berlin. It is based on preliminary work from the project, particularly on the development of three ideal types of data regulation and a methodology for their scenario-based evaluation.