Sustainable data regulation for the Berlin health sector: background and policy recommendations

Nachhaltige Datenregulierung für den Berliner Gesundheitssektor: Hintergründe und Policy-Empfehlungen

Digitization has great socio-ecological potential in the healthcare sector. The processing of health data can lead to an improved information and decision-making basis and thus promote public health. Furthermore, citizens can be empowered to manage their own health data in a data-sovereign manner and to make it available for the common good by "donating" data. However, there are risks to be considered. For example, data-sovereign decisions must made be possible in actuality and for everyone, and personality-related risks are particularly relevant in the area of sensitive health data.

This background paper examines and evaluates different approaches to data regulation in the Berlin health sector from a socio-ecological perspective and formulates policy recommendations for decision-makers in Berlin. It is based on preliminary work from the project, particularly on the development of three ideal types of data regulation and a methodology for their scenario-based evaluation.

Publication date

Type of Result



Johannes Franke

Published in

Wissen. Wandel. Berlin. Report 20

Project Staff


Data donations, data trusts, environmental justice, health data, digital public health, digital divide